New Zealand Fibromyalgia Information Greetings!   Welcome to Positive Living for People with Fibromyalgia and OOS/RSI, Your Friends and Caregivers.   We're bringing Information to You! This page inserted on  08 August 2003

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ADVANCE NOTICE       Claudia Marek Coming to New Zealand      Register Now!      Auckland Conference ~ 10, 11, 12 October 2003       Christchurch Seminar ~ Wednesday Evening, 8 October 2003

Click on the categories which interest you
We advise readers to refresh this page regularly for updates

  • FOR PEOPLE IN THE NORTHERN REGION
  • WEST AUCKLAND FIBROMYALGIA SEMINAR

  • FOR PEOPLE THROUGHOUT NEW ZEALAND - all welcome!

  • HIGHLIGHT OF THE YEAR ~ HEAR CLAUDIA MAREK from L.A.

  • FOR PEOPLE WITH OOS/RSI THROUGHOUT NEW ZEALAND

  • UPDATE ~ LEGISLATION FOR SUPPLEMENTS

  • N.Z. NOTICEBOARD & INQUIRIES

  • SPECIALS FOR EVERYONE


  • World International Day for Fibromyalgia is 12 May
  • Click here for information to give people and newspapers at any time
  • Click here for a concise history of Fibromyalgia with more detail
  • Click here for the latest medical update on the Management of Fibromyalgia
  • Click here for FM history, criteria, symptoms, diagnosis, treatment and Fibro in the future


  • Please remember to email details for your online notices to Jacqui
    by the 25th of each month for free publication for the following or upcoming months.

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  • FOR PEOPLE IN THE NORTHERN REGION
          formerly known as Auckland & Northland Divisions


  • AUCKLAND FIBRO SUPPORT
    ALL WELCOME

    Bi-Monthly Evening Meeting
    7.30pm~9.00 pm, Thursday, 14th August 2003
    St Lukes Community Centre
    130 Remuera Road, Remuera, Auckland

    "Be In The Zone"
    Julianne Taylor ~ Zone Therapist

    Latest Advance for Fibromyalgia - "The Omega Zone"
    Hear about the benefits of pharmaceutical grade fish oil


    Door charge ~ Single $5.00 ~ Partners or Couples $7.50
    All Partners & Caregivers Welcome

    For inquiries at any time, contact   Convenor ~ Jacqui  
    ph 09 578 1958

    If "Interaction" is the Key word, then our first Saturday Seminar was "Spot On"
    Besides having excellent discussions with the speakers,
    there was a continual hum of harmony amongst the people who attended. Just great!

    Read about the first Saturday Seminar at Takapuna   Click here
    For people in West Auckland ~ Don't forget the Saturday Seminar
    at Titirangi ~ starting 10.00am, Saturday, 13 September 2003 ` Click here

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    AUCKLAND FIBROMYALGIA SUPPORT
    Meetings for 2003

    Saturday Seminars     There will not be any afternoon meetings in 2003
    We are holding 3-4 Saturday Seminars for Fibro instead
    in various areas of Auckland Region.
    Watch for dates & times in your area.


    Door charge $15.00   Couples $20.00   Members of Public Welcome
    Because of the generosity of the Titirangi RSA,
    Early-bird door charge at Titirangi will be $12.50 for singles, $18.00 for couples.
    Remember, couples may be two friends, partners, parent and young adult or with a caregiver.

    Bring a friend ~ ~ Register Early ~ ~ Bring a partner

    Evening Meetings     7.30pm     St Lukes Community Centre
    Take driveway to right of St Lukes Church, 130 Remuera Rd, Remuera, Auckland
    Door charge $5.00   Couples $7.50   Members of Public Welcome

    Everyone Welcome   Contact Convenor Jacqui for details or phone 09 578 1958

    2003   Saturdays

    2003   Sat 13 September
    10.00am - 3.30pm
    WEST AUCKLAND
    Titirangi RSA Conference Venue
    South Titirangi Road, Titirangi, West Auckland
    Dr Terry Macedo, Rheumatologist
    Julianne Taylor, Barry Vautier & others
    Light Lunch & Cuppa
    Register Now for Early Bird Price - click here
    Phone Donna 09 818 2462

    2003   Evenings

    2003   Thurs Feb 13         cancelled
    2003   Thurs April 10         7.30pm
    2003   Thurs June 12         7.30pm

    2003   Thurs Aug 14           7.30pm
    2003   Thurs Oct 16        cancelled
    2003   Thurs Dec 4             7.30pm
    2003   SAT, 8 OR 15 Nov ~ SOUTH AUCKLAND

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    New! Northland Fibromyalgia Group
    FROM KAWAKAWA to NORTH CAPE
    KERI KERI SUPPORT GROUP
    ALL WELCOME


    Meeting for Fibromyalgia
    Speaker to be confirmed
    1.30pm, 10th August 2003
    Keri Keri Ambulance Station


    All Partners & Caregivers Welcome

    For inquiries at any time,
    contact   Arthritis Educator ~ Margaret Billington
    or email   Margaret  
    ph 09 407 9766

    The Inaugural Meeting for Keri Keri Fibro Support was held last month and the group formed under the auspices of Arthritis Educator Margaret Billington. The group covers North Cape to Kawakawa.
    They have two support members who are happy to spend time with newly diagnosed people and other fibromyalgics.
    The mission of the group is to give support and understanding
    to those with fibromyalgia and their families.
    Congratulations Keri Keri!

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    NORTHLAND FIBROMYALGIA SUPPORT
    ALL WELCOME in WHANGERAI

    Meetings held every two months
    at 10.15am, on the 3rd Thursday of second month
    Age Concern House,
    Manse Street, Whangarei

    As well as listening to the speaker, there is an opportunity to discuss points of interest
    and to learn from others who have similar experiences
    Come along and ask your questions about Fibromyalgia

    Maggie, the Arthritis Educator says,
    "We had a very successful Public meeting in August 2002
    with around 70 people attending.
    Our Fibromyalgia group has been active for nearly seven years
    and publishes a group newsletter.  Everyone is welcome."

    For inquiries at any time, contact   Maggie, Arthritis N.Z.  
    ph 09 438 3741

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    HIBISCUS COAST~RODNEY SUPPORT
    ALL WELCOME


    Meeting for Fibromyalgia
    Dates & Times are not yet confirmed for 2003
    Red Beach Methodist Church Hall
    Red Beach Road, Red Beach, Hibiscus Coast

    All Partners & Caregivers Welcome

    For inquiries at any time, contact   Fay Dale ph 09 326 0919
    or email   Rosemary Agnew   ph 09 428 1455

    Read about the Inaugural Meeting   Click here

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    FOR PEOPLE WHO CAN TRAVEL TO AUCKLAND
    ALL WELCOME!


    WEST AUCKLAND SEMINAR

    Saturday
    13 September 2003

    10.00 for 10.15am - 3.30pm
    Titirangi RSA Conference Venue
    South Titirangi Rd, Titirangi, Auckland


    SPEAKERS YOU WANT TO HEAR

    See PROGRAMME: 'FIBRO SATURDAY SEMINAR'    
    Click here
    REGISTRATION FORM    
    Click here
    Learn more about Fibromyalgia!

    Have your questions answered by the Experts!

    Rheumatologist Terry Macedo
    Julianne Taylor, Barry Vautier & Others
    Have Lunch & Chat with Other People who have FIbro


    Phone ~ Donna Leader ~ 09 818 2462 or Jacqui ~ 09 578 1958
    or please email Donna & register ~
    Donna Leader

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    FOOT and ANKLE SEMINAR

    Saturday
    16 August 2003
    10.00 am - 2.30 pm
    St Columba Centre
    Ponsonby, Auckland

    SPEAKERS YOU WANT TO HEAR

    Orthopaedic Surgeon, Orthotist, Physiotherapist & Podiatrist
    Learn more about Your Hands and Feet!
    Have your questions answered by the Speakers!
    Phone Pam Antill 09 820 or email Pam Antill


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    Y-Fitness Total Fitness Program__Mature Adults Group Exercise Classes_Ph Marie 09 303 2069             or Mobile Ant 025 241 0479

    New Group Exercise Classes
    At Y Fitness!
    Come in and enjoy our new exercise classes for mature adults
    at Auckland’s Premier Inner City Health and Fitness Centre.

    As part of our affiliation to the Heart Foundation of N.Z.,
    we invite you all to come along from 10am - 11am
    especially to our exercise classes on Fridays

    Wear loose comfortable clothing & comfortable shoes
    Your leader is Anthony Fong, who understands very well that not everyone can do everything.
    He says, "If you want to keep fit and enjoy being with a group when exercising,
    come along and join in the fun for total body fitness."
    For further information contact Maree Smith at the YMCA   phone 09 303 2069
    or click here
    The Y-Fitness Exercise Program is fully Endorsed by "Positive Living"

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    'Physio in the Pool' - Hydrotherapy
    Exercises suitable for joint stiffness, muscular or joint pain, fibro & arthritis
    Mornings of Tuesdays, Wednesdays & Fridays
    and Wednesday Evenings

    The Pool at Laura Fergusson Trust
    224 Great South Road, Remuera
    Thursday Mornings
    Jellicoe Pool at Onehunga
    Cost $6.00 per class
    Your physiotherapist is Dania Emery MNZSP
    For further information contact Dania   phone 09 275 9408

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    Notice re 'Sunshine Group'
    There is a group - called 'The Sunshine Group' - operating in the Mt Albert area
    for people with M.E./C.F.S. and Post Polio Syndrome.

    PLEASE NOTE Auckland Fibromyalgia Support have no association nor affiliation with this group.
    Similarly, neither Arthritis New Zealand nor the Auckland Division of Arthritis New Zealand
    have any association nor affiliation with this group either.
    We do not have any knowledge of the purpose, aims or ethics of this group.


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    New Zealand
    Please click here to take you to full details of all meetings in New Zealand

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    Praise is like champagne -
    it should be served while still bubbling.
          xxxx       xxxx
    Happiness is not something you find -
    It's something you create!

    - from Lesley D., Gore, Southland

     

     

     

     

     

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  • OCCUPATIONAL OVERUSE SUPPORT IN NEW ZEALAND


  • OCCUPATIONAL OVERUSE SUPPORT - OOS (NZ) Inc.
    OOS NZ Inc
    Contact: Marie
    OOS NewZ published monthly: Newsletter Editor: Marie

    For OOS inquiries: email Marie
    Please phone   Marie on 03 385 3936
    Hours: Mon-Fri 10.00am - 3.00pm   Toll calls Mon-Thurs 6.00 - 8.00pm
    (if available)
    Write to Marie at fax 03 385 4191
    or P.O.Box 18-819, New Brighton, Christchurch, N.Z.

    For your local contact, see below or Website OOS section.

    'Pain Poppies'
    Book Launch for Margaret Moon's book held on 20 February 2003
    Margaret Moon says,
    "Many OOS sufferers have contributed material that has become
    part of this boook's fabric, for which I am truly grateful.
    This is, in part, your book"

    Watch here for details of cost and ordering.

    Christchurch OOS Support
    Contact Person & Chairperson Julie Knox ph: 03 381 2564
    Next Meeting   11.00 am Friday, 5 September 2003
    Lunch Meeting     Please Confirm Venue
                                  Midday Friday, 19 September 2003

        Phone Julie for details   See you there!

    Regular Meetings for 2003

    3 Oct.   7 Nov.   5 Dec. 2003
    Meetings usually held 11.00 am on first Friday of each month
    Meeting Venue: Disabled Person's Centre, 314 Worcester St, Christchurch

    OOS Help Taranaki
    New Plymouth OOS Support

    Contact Person: Chantel ph: 06 759 7004
    Contact Person: Christine ph: 06 753 3960

    Palmerston North OOS Support
    Contact Person: Margaret ph: 06 357 7462

    Upper Hutt OOS Support
    Contact Person: Pauline ph: 04 972 9008

    Wellington OOS Support
    Contact Person: Katrina ph: 04 389 2191

    Timaru OOS Support
    Contact Person: Steven ph: 03 688 1321

    Dunedin OOS Support
    Contact Person: Natasha ph: 03 455 3723

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    FOR PEOPLE THROUGHOUT NEW ZEALAND
     


    SJOGREN'S SYNDROME NEW ZEALAND

    Sjogren's Syndrome NZ   Contact: Felicity
    Felicity organises the annual workshop, held each year
    at the Ernst & Marion Davis Library and Postgraduate Centre,
    Auckland Central Hospital

    For all Sjogren's inquiries: email Felicity
    Please phone Felicity on 09 528 6384 or fax - 09 528 6320
    Write to Felicity Tompkins, P.O. Box 25-153,
    St Heliers, Auckland 1005, New Zealand
    'Sjogren's Syndrome N.Z.' published quarterly:
    Newsletter Editor: Felicity Tompkins
    Click here for   Sjogren's Syndrome New Zealand



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  • EHLERS DANLOS SUPPORT (E.D.S.) IN NEW ZEALAND


  • EHLERS DANLOS FOUNDATION OF NEW ZEALAND
    E.D.S. NZ   Contact: Jen
    'Loosely Speaking' published twice-yearly
    Newsletter Editor: Jen Longshaw

    For all E.D.S. inquiries: email Jen
    Please phone   Jen on 06 874 7799 - 025 95 7799 or 021 2153 471

    Write to Jen Longshaw, c/- Maraetuna Farm, Craggy Range Road,
    R.D.12, Havelock North, Hawkes Bay, New Zealand

    Click on the website for E.D.S. Ehlers Danlos Foundation of New Zealand

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    AUCKLAND POST-POLIO SUPPORT
    Contact: Doreen   Auckland Post-Polio Support

    'Polio Happenings' Newsletter Editors D. & R. published 4 times yearly

    Calendar for 2003 Group Meetings

    on second Wednesday of every third month
    10 Sept.   10 Dec. 2003
    Venue ~ Disabled Resource Center (DRC), Erson Ave, Royal Oak, Auckland
    Contact Doreen ph 09 534 6151 fax 09 537 3104 mob 021 128 2965
    Write to 36 Eastern Beach Rd, Bucklands Beach, Auckland 1704
    Click here for   Post-Polio Support website

    COURSE FOR PEOPLE WITH CHRONIC CONDITIONS

    'Discover You Can'
    Live A Healthy Life Through Self-Management

    A popular & helpful course ~ run by Arthritis N.Z.

    Developed at Stanford University, California
    this course is successful in countries around the world.
    Participants learn from Course Leaders, gain insights & wisdom from others on the course.
    Being with people finding similar challenges is a powerful motivator.
    YOU ARE NOT ALONE

    This course will run on days to suit participants.

    Full Cost : $25.00   Register at Arthritis N.Z. ph 09 529 0862


    If you are keen to do the course -
    Call ArNZ   They will phone you when there is sufficient interest for another course
    I have done this course and personally recommend it - Jacqui

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    "Self Management
    for Chronic Conditions" courses

    See Article: 'BUILDING A HEALTHY LIFE'
    Click here
    Held Throughout New Zealand on Various Dates & Times
    For details of the next course in your area
    Phone your local Division of Arthritis New Zealand
    Auckland region:
    phone Arthritis Educator Pam Antill 09 486 3195 or 09 529 0862
    Canterbury region:
    phone Arthritis Educator Kathy Simmons 03 366 8383

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    N.Z. NOTICEBOARD & INQUIRIES

  • Hi to all people using Guaifenesin,
    Megan P, of Gisborne is our Senior Resource person, helping people using Guai.
    She is very knowledgeable having researched Guai thoroughly, is successfully using Guai herself and has done so for nearly four years. She also speaks with Dr Paul St Amand in U.S.A. and Dr Johnathan Kuttner of Waiuku, South Auckland. You can contact Megan with any questions, at
    Megan P.

    Other Guai Resource people will also write to those using Guai.
    Click here for Zanne in Waikato     Marian in Nelson-Marlborough     Vivienne in Christchurch

  • A Mindful Solution        

  • For Sale   C.D.s ~ A Mindful Solution
    We have the New Zealand Agency for Dr Gaille Brennan's C.D.s.

    For better health through self-hypnotherapy, click through to A Mindful Solution
    If you wish to write to Dr Brennan, contact Gaille

  • Help! re Platts Biospectrum 26
    Does anyone know anything about Platts Biospectrum 26? Are you taking it? Does it help people with fibro?
    Please write to Shirley and cc to Jacqui.

  • For Sale   Not offered very often ~ Klass Vaki Support Mattress
    I have a Klass Vaki Mattress, size medium, to sell as it is the wrong proportions for me.
    I used it for about 6 weeks and it was great for my sore arms and shoulders. Unfortunately, the lumbar support area was totally wrong for me. My lower back got sore because I have a very short back from shoulders to waist but quite a long lumbar spine and tailbone. I'm willing to negotiate price & can possibly freight free to main centres. Contact Kat M. ph 04 976 3366 Wngtn. NB note new phone number
    Note   Selling at a good price, this is a marvellous opportunity for someone. I would be lost without my K.V. It's so comfy - Jacqui, Ed.

  • For Sale   Support NZ Fibro ~ New Edition ~ Entertainment Books
    For People in Auckland Region ~ Shopping in Auckland ~ Save $$$$$
    Entertaining ~ Cafes ~ Dining Out ~ Amusements ~ Theatres ~ Save $$$$$
    Accommodation in Auckland ~ Aussie ~ N.Z. ~ Rental Cars ~ Save $$$$$
    Ideal for that hard~to~find Gift ~ only $55.00 ~ AND supports Positive Living ~ Contact Jacqui

  • E-Pals   Would Anyone Like to Write to these People?
    These people would love to email with others who have fibro.
    Click here for Fay in Northland - would like to talk to those with heart problems and fibro.
    Click here for Joan in Timaru - would like to write to people with really bad IBS (Irritable Bowel Syndrome).

    Please note   Both "Positive Living" and the Editor accept these writers in good faith as bone fide people with fibro
    and do not accept any responsibility for any information given or developments in the relationships.

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    Making Life Easier and More Fun!
    ...opportunities to hear top speakers
        ...all experts in their field.


    Email your online address to Jacqui to receive "Positive Living Online"
    - the regular online newspage for People in New Zealand with Fibromyalgia and OOS/RSI.