New Zealand Fibromyalgia Information Greetings!   Welcome to Positive Living for People with Fibromyalgia and OOS/RSI, Your Friends and Caregivers.   We're bringing Information to You! This page inserted on  05 December 2003

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HAVE A LOVELY HOLIDAY BREAK       ENJOY FAMILY, GOOD FRIENDS AND GOOD COMPANY       WE'LL CATCH UP AGAIN IN THE NEW YEAR       BEST WISHES - from Jacqui and all at POSITIVE LIVING

Click on the categories which interest you
We advise readers to refresh this page regularly for updates

  • FOR PEOPLE IN THE NORTHERN REGION

  • FOR PEOPLE IN THE MIDLAND REGION

  • FOR PEOPLE IN THE CENTRAL REGION

  • FOR PEOPLE IN THE SOUTHERN REGION


  • FOR PEOPLE THROUGHOUT NEW ZEALAND - all welcome!

  • POSITIVE LIVING HAS FIBRO BOOKS, CDs & VIDEOs FOR SALE

  • FOR PEOPLE WITH OOS/RSI THROUGHOUT NEW ZEALAND

  • URGENT ~ YOUR HELP URGENTLY NEEDED NOW! PLEASE HELP!

  • N.Z. NOTICEBOARD & INQUIRIES

  • SPECIALS FOR EVERYONE


  • World International Day for Fibromyalgia is 12 May
  • Click here for information to give people and newspapers at any time
  • Click here for a concise history of Fibromyalgia with more detail
  • Click here for the latest medical update on the Management of Fibromyalgia
  • Click here for FM history, criteria, symptoms, diagnosis, treatment and Fibro in the future


  • Please remember to email details for your online notices to Jacqui
    by the 25th of each month for free publication for the following or upcoming months.

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    FOR PEOPLE IN THE NORTHERN REGION

    formerly known as Auckland & Northland Divisions
     

    Northern Region
    Please click here to take you to full details of all meetings in your region
    Don't forget the FM Meetings in Keri Keri, Whangerai, Rodney, Auckland Central, Waitakere and South Auckland


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    AUCKLAND FIBRO SUPPORT
    ALL WELCOME

    Bi-Monthly Evening Meeting
    7.30pm~9.00 pm, Thursday, 4th December 2003
    St Lukes Community Centre
    130 Remuera Road, Remuera, Auckland

    "Feldenkrais For You"
    David Sullivan ~ Feldenkrais Therapist

    Christmas Meeting ~ Please Bring a Smile
    a small plate
    and an item or thought to share with others
    about something which has helped you with your fibro.
    ~ There will be heaps of fun raffles ~

    (you may contribute a small gift to be raffled for others, if you wish)

    Door charge ~ Single $5.00 ~ Partners, Couples or Two Friends $7.50
    All Partners & Caregivers Welcome

    For inquiries at any time, contact   Convenor ~ Jacqui   ph 09 578 1958

    Read about Saturday Seminar in Takapuna 2003   Click here
    Don't forget the FM Meetings in Keri Keri, Whangerai, Rodney and Waitakere.

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    FOR PEOPLE WHO CAN TRAVEL TO AUCKLAND



    ALL WELCOME!


    NORTH SHORE SEMINAR

    Saturday
    February ~ March 2004

    We are planning a Saturday Seminar for Fibro
    on the North Shore
    for February ~ March 2004


    WATCH THIS SPACE

    Learn more about Fibromyalgia!

    Have your questions answered by the Experts!
    Chat with Other People in your area who have Fibro
    Please Bring a Plate for a Shared Lunch


    Phone ~ Jacqui ~ 09 578 1958
    Or please email Jacqui & register ~
    Jacqui@Positive Living

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  • FOR PEOPLE IN THE MIDLAND REGION
          formerly known as Waikato, Taranaki, Bay of Plenty,
    Tauranga-Western Bay of Plenty, & Gisborne Divisions


  • Taranaki Fibromyalgia Support
    Arthritis N.Z.   Co-ordinator   Cathy
    Arthritis N.Z.   Arthritis Educator   Ngaire
    Phone
    Ngaire or Cathy at 06 759 0068
    Write P.O.Box 234 New Plymouth

    Taranaki Fibromyalgia Support group   Convenor   Kay
    Phone Contact Kay at 06 753 8991
    Visitors welcome to all meetings
    Venue Arthritis New Zealand, 28 Young St, New Plymouth

    Tauranga Fibromyalgia Support
    Arthritis New Zealand   Arthritis Educator   Helen

    Rotorua Fibromyalgia Support
    Arthritis New Zealand   Arthritis Educator   Jessica

    Gisborne Fibromyalgia Support
    Arthritis New Zealand   Arthritis Educator   Cheryl

    Waikato Fibromyalgia Support
    Arthritis New Zealand   Arthritis Educator   Rhonda

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  • FOR PEOPLE IN THE CENTRAL REGION
          formerly known as Wanganui, Wairarapa, Wellington,
    Manawatu & Hawkes Bay Divisions

  • FOR PEOPLE IN HAWKES BAY

  • HAWKES BAY FIBROMYALGIA SUPPORT
    ALL WELCOME!


    Arthritis N.Z. Arthritis Educators Janice and Wendy

    are available for assistance if needed.
    Office Hours 9.30am - 3 p.m Mon, Tue, Thurs, Fri & Wed 8 a.m. - 1 p.m
    Postal:   PO Box 4102, Marewa, Napier
    Phone 06 834 0188       Fax 06 834 4231

    NEXT MEETING - NAPIER
    Venue:     Arthritis New Zealand rooms
    RSA Buildings, Cnr Hastings & Vautier Streets in Napier.

    (Everyone please bring a small plate for supper)

    COMMITTEE
    Co-ordinators
    Janet Mayberry, 878 0195     Stephanie Chapman 844 6271
    Secretaries Lesley Simpson 844 2554     Marie Baggart 843 6586

    Many Fibro people attend our 'Living a Healthy Life' courses
    and derive great benefits. They empower people to take charge of their lives again.
    Contact Arthritis Educator Janice
    The Fibromyalgia group usually meets every 2nd month in Napier,
    at 7.30pm, on the 1st Tuesday evening

    Remember to email your details, including online address, to Jacqui
    to receive 'Positive Living Online' and 'Positive Living - Postal'
    - the publications for People in New Zealand with Fibromyalgia and OOS/RSI.

  • FOR PEOPLE IN MANAWATU & LEVIN

  • MANAWATU & LEVIN FIBROMYALGIA SUPPORT
    ALL WELCOME!

    including people from Masterton & Wanganui areas

    Contact ~ Arthritis N.Z. Health Educator Jennie

    Levin Support Group is growing well
    Contact ~ Dianna Brooks ph. 06-368 6983
    Manawatu Venue Hearing House, 435 Church St, Palmerston North
    Manawatu Support are running an exciting programme for Fibromyalgia.


    Find out when the next fibro meeting is!
    2004 meeting dates for Manawatu and Levin are not yet confirmed.
    Hours           8am - 1pm, Monday to Thursday
    Write           P.O.Box 1274 Palmerston North
    Phone     Jennie or Jenny at 06 256 6240

  • FOR PEOPLE IN WELLINGTON AREA

  • WELLINGTON FIBROMYALGIA SUPPORT
    ALL WELCOME!


    Arthritis N.Z.Arthritis Educator Kathy
    Meeting Venue:   Wellington Division, Arthritis New Zealand,
    174 Hutt Rd, Petone

    For all inquiries, write: Wellington Division, Arthritis N.Z., 174 Hutt Rd, Petone
    or contact Arthritis Educator ~ Kathy or ph 04 569 1126


    Wanganui Fibromyalgia Support

    Arthritis N.Z. Arthritis Educator   Anne

    Meetings   1.30pm, 4th Thursday of Alternate Months

    Venue   Wakefield Conference Room,
    Community House, Ridgeway St, Wanganui
    Phone   Anne at 06 345 2377
    Write   P.O.Box 102 Wanganui.

    Wairarapa Fibromyalgia Support
    Arthritis New Zealand   Arthritis Educator

    Newly formed Wairarapapa Fibro Support Group
    Everyone Welcome!

    Contact Resources Editor - Viv
    for Masterton meeting dates and details.

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  • FOR PEOPLE IN THE SOUTHERN REGION
          formerly known as Nelson, Marlborough, Canterbury, Greymouth,
    South Canterbury, Otago & Southland Divisions

  • FIBROMYALGIA SUPPORT IN NELSON

  • NELSON FIBROMYALGIA SUPPORT
    ALL WELCOME!


    Arthritis New Zealand Manager   Judy
    The Fibro group continues to meet every month.
    For details, contact Arthritis Educator Tina Simpson

    Remember to email your online details to Jacqui
    to receive "Positive Living Online"
    - the regular online newspage for People in New Zealand with Fibromyalgia and OOS/RSI.

    Marlborough Fibromyalgia Support
    Arthritis New Zealand   Secretary Ginette
    For details contact  Arthritis Educator Christina

     

  • FIBROMYALGIA SUPPORT IN CANTERBURY

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    CANTERBURY FIBROMYALGIA SUPPORT
    ALL WELCOME!


    Canterbury Arthritis Society (CAS) Manager: Rosemary
    Arthritis Educator Helen
    For Fibro inquiries ~ Helen ph 03 366 8383
    or write: P.O.Box 13-363, Christchurch

    Canterbury Fibromyalgia Support
    Convenor: Yvonne

    Everyone with fibro & caregivers welcome. Come & join us!

    Swimming and Socializing Sessions
    Weekly, 5pm - 6pm Monday evenings
    Burwood Hospital Physio Pool

    Casual get-togethers at Hospital Cafe afterwards

    Christmas Meeting
    Papanui Workingmen's Club
    7.00pm ~ Monday, 15 December ~ $5.95 Dinner
    All welcome! Prior notice to Yvonne is appreciated

    We welcome people from Nelson-Marlborough, Westland,
    South Canterbury, Otago & Southland
    For your copy of the latest CAS fibro newsletter -
    email Convenor Yvonne or phone 03 377 6072

    For Guai inquiries in Christchurch
    email Vivienne at Positive Living or phone 03 359 6789


    Remember to email your postal details to Jacqui to receive "Positive Living"
    the twice-yearly N. Z. newsletter for People with Fibromyalgia & OOS

    Greymouth-West Coast Fibromyalgia Support
    Arthritis New Zealand   Arthritis Educator   Ellen

     

  • FIBROMYALGIA SUPPORT IN SOUTH CANTERBURY

  • SOUTH CANTERBURY FIBROMYALGIA SUPPORT
    ALL WELCOME!

    Arthritis N.Z. email: Arthritis Educator Diane or ph 03 688 9289

    Meetings:   held monthly, 1.30pm First Thursday of each month
    Venue:   Arthritis N.Z. Community House
    82-90 Sophia St, Timaru
    Phone: Diane at 03 688 9289   Write: P.O.Box 460 Timaru.
    Email   Arthritis Educator Diane for up-to-date details.

     

  • FIBROMYALGIA SUPPORT IN OTAGO

  • OTAGO FIBROMYALGIA SUPPORT
    ALL WELCOME!

    Arthritis N.Z. Arthritis Educator Julie 03 471 6160
    Community House,   283-301 Moray Place, Dunedin


    Otago's fibro support group
    developed from a successful seminar Julie held in September 2001.
    Read about the seminar   Click here
    A member of the original group holds regular informal get-togethers at her home.
    Julie (daytime) or Kathy Knight (evenings) are the contacts.

    Please phone to confirm the next informal meeting date
    Everyone welcome!

    For phone inquiries & details, contact
    Julie Pickford
    , Arthritis Educator, ph 03 471 6160 daytime
    or Kathy Knight at Mosgiel, ph 489 3190 evenings
    Remember you are welcome to email your details to Jacqui
    to receive "Positive Living - Postal"
    - the regular newsletter for People in New Zealand with Fibromyalgia and OOS/RSI.

     

  • FIBROMYALGIA SUPPORT IN THE SOUTH

  • SOUTHLAND FIBROMYALGIA SUPPORT
    ALL WELCOME!

    Arthritis N.Z. Arthritis Educator Robyn
    Phone   Isobel, Gay or Robyn on 03 218 3639

    Call in at   184 Esk St, Invercargill
    Write to   P.O.Box 1211 Invercargill

    Next Meeting ~ 1.00pm - 3.30pm
    Third Saturday in February 2004

    Venue:   St Stephens Church Hall
    Cnr North Rd and Ruru St, Waikiwi, Invercargill

    The Arthritis Xmas party was held on December 3 & the last Fibro meeting for 2003 on November 15.
    There was a good attendance with people bringing a xmas item they made,
    along with the recipe or instructions to share with the group.
    We had a great assortment of decorations, food, cards and even jerseys for your dog!
    The coffee morning on Nov 24 was a walk around the gardens & aviary
    with a cuppa at the gardens kiosk.
    Final Fibro newsletter for 2003 comes out in December.

    Meetings held: 1.00pm - 3.30pm   3rd Saturday of the month
    Please bring a smile and $1.00 for tea and coffee each month
    or the yearly sub/donation of $5.00 (tax deductible)

    Everyone is welcome at meetings including
    all people from Central & South Otago, Milton, Gore and Southland.


    If you would like to come to the next meeting, please

    Contact Convenor Clare for details

    Phone:   Isobel, Gay or Robyn at 03 218 3639
    Southland FMS put out a newletter once a month   Contact Lesley

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    "Accessible Walks S.I." ~ Anna Jameson's Book
    Copies available for purchase ~ $25.00 ~ Clare ph 215 9441

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    COURSE FOR PEOPLE WITH CHRONIC CONDITIONS

    'Discover You Can'
    Through Self-Management

    A popular & helpful course ~ run by Arthritis N.Z.

    Developed at Stanford University, California
    this course is successful in countries around the world.
    Participants learn from Course Leaders, gain insights & wisdom from others on the course.
    Being with people finding similar challenges is a powerful motivator.
    YOU ARE NOT ALONE
    Cost : $25.00   Register at Arthritis N.Z. ph 218 3639
    If you are keen to do the course   Call ArNZ
    They will phone you when there is sufficient interest for another course
    I have done this course and personally recommend it - Clare.

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    Praise is like champagne -
    it should be served while still bubbling.
          xxxx       xxxx
    Happiness is not something you find -
    It's something you create!

    - from Lesley D., Gore, Southland

     

     

     

     

     

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  • OCCUPATIONAL OVERUSE SUPPORT IN NEW ZEALAND


  • OCCUPATIONAL OVERUSE SUPPORT - OOS (NZ) Inc.
    OOS NZ Inc
    Contact: Marie
    OOS NewZ published monthly: Newsletter Editor: Marie

    For OOS inquiries: email Marie
    or please phone   Marie on 03 385 3936
    Hours ~ Mon-Fri 10.00am~3.00pm   Toll calls Mon~Thurs 6.00 - 8.00pm
    (if available)
    Write to Marie at fax 03 385 4191
    or P.O.Box 18-819, New Brighton, Christchurch, N.Z.

    For your local contact, see below or Website OOS section.

    'Pain Poppies'
    Book Launch for Margaret Moon's book was held on 20 February 2003
    Margaret Moon says,
    "Many OOS sufferers have contributed material that has become
    part of this boook's fabric, for which I am truly grateful.
    This is, in part, your book"

    Watch here for details of cost and ordering.

    Christchurch OOS Support
    Contact Person & Chairperson Julie Knox ph: 03 381 2564
    Next Meeting   11.00 am Friday, 5 September 2003
    Lunch Meeting     Please Confirm Venue
                                  Midday Friday, 19 September 2003

        Phone Julie for details   See you there!

    Regular Meetings for 2003

    5 December 2003
    Meetings usually held 11.00 am on first Friday of each month
    Meeting Venue: Disabled Person's Centre, 314 Worcester St, Christchurch

    OOS Help Taranaki
    New Plymouth OOS Support

    Contact Person: Chantel ph: 06 759 7004
    Contact Person: Christine ph: 06 753 3960

    Palmerston North OOS Support
    Contact Person: Margaret ph: 06 357 7462

    Upper Hutt OOS Support
    Contact Person: Pauline ph: 04 972 9008

    Wellington OOS Support
    Contact Person: Katrina ph: 04 389 2191

    Timaru OOS Support
    Contact Person: Steven ph: 03 688 1321

    Dunedin OOS Support
    Contact Person: Natasha ph: 03 455 3723

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    FOR PEOPLE THROUGHOUT NEW ZEALAND
     


    SJOGREN'S SYNDROME NEW ZEALAND

    Sjogren's Syndrome NZ   Contact: Felicity
    Felicity organises the annual workshop, held each year
    at the Ernst & Marion Davis Library and Postgraduate Centre,
    Auckland Central Hospital

    For all Sjogren's inquiries: email Felicity
    Please phone Felicity on 09 528 6384 or fax - 09 528 6320
    Write to Felicity Tompkins, P.O. Box 25-153,
    St Heliers, Auckland 1005, New Zealand
    'Sjogren's Syndrome N.Z.' published quarterly:
    Newsletter Editor: Felicity Tompkins
    Click here for   Sjogren's Syndrome New Zealand



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    AUCKLAND POST-POLIO SUPPORT
    Contact: Doreen   Auckland Post-Polio Support

    'Polio Happenings' published 4 times yearly
    Newsletter Editors D. & R.

    Calendar for 2003 Group Meetings

    on second Wednesday of every third month
    10 December 2003
    Venue ~ Disabled Resource Center (DRC), Erson Ave, Royal Oak, Auckland
    Contact Doreen ph 09 534 6151 fax 09 537 3104 mob 021 128 2965
    Write to 36 Eastern Beach Rd, Bucklands Beach, Auckland 1704
    Click here for   Post-Polio Support website


  • EHLERS DANLOS SUPPORT (E.D.S.) IN NEW ZEALAND


  • EHLERS DANLOS FOUNDATION OF NEW ZEALAND
    E.D.S. NZ   Contact: Jen
    'Loosely Speaking' published twice-yearly
    Newsletter Editor: Jen Longshaw

    For all E.D.S. inquiries: email Jen
    Please phone   Jen on 06 874 7799 - 025 95 7799 or 021 2153 471

    Write to Jen Longshaw, c/- Maraetuna Farm, Craggy Range Road,
    R.D.12, Havelock North, Hawkes Bay, New Zealand
    Click on the E.D.S. website Ehlers Danlos Foundation of New Zealand

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    "Discover You Can"
    Self Management
    for Chronic Conditions courses

    See Article: 'BUILDING A HEALTHY LIFE'
    Click here
    Held Throughout New Zealand on Various Dates & Times
    For details of the next course in your area
    Phone your local Division of Arthritis New Zealand
    Northern Region ~
    Arthritis Educator Pam Antill ph 09 486 3195 or 09 529 0862
    Southern Region ~
    Arthritis Educator Kathy Simmons ph 03 366 8383

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    N.Z. NOTICEBOARD & INQUIRIES

  • Hi to all people using Guaifenesin,
    Megan P, of Gisborne is our Senior Resource person, helping people using Guai.
    She is very knowledgeable having researched Guai thoroughly, is successfully using Guai herself and has done so for nearly five years. She also speaks with Dr Paul St Amand in U.S.A. and Dr Jonathan Kuttner of Waiuku, South Auckland. You can contact Megan with any questions, at
    Megan P.

    Other Guai Resource people will also write to those using Guai.
    Click here for Zanne in Waikato     Marian in Nelson-Marlborough     Vivienne in Christchurch

  • For Sale   C.D.s ~ A Mindful Solution
    We have the New Zealand Agency for Dr Gaille Brennan's C.D.s.

    For better health through self-hypnotherapy, click through to A Mindful Solution

    To write to Dr Brennan, contact Gaille

  • For Sale   Not offered very often ~ Klass Vaki Support Mattress
    I have a Klass Vaki mattress, size medium, to sell as it is the wrong proportions for me.
    I used it for about 6 weeks and it was great for my sore arms and shoulders. Unfortunately, the lumbar support area was totally wrong for me. My lower back got sore because I have a very short back from shoulders to waist but quite a long lumbar spine and tailbone. I'm willing to negotiate price & can possibly freight free to main centres.
    Contact Kat M. ph 04 976 3366 Wngtn. NB new phone number
    Note     Selling at a good price, this is a marvellous opportunity for someone. I would be lost without my K.V. It's so comfy - Jacqui, Ed.

  • Help! re Platts Biospectrum 26
    Does anyone know anything about Platts Biospectrum 26? Are you taking it? Does it help people with fibro?
    Please write to Shirley and cc to Jacqui.

  • E-Pals   Would Anyone Like To Write To These People?
    These people would love to email with others who have fibro.
    Click here for Fay in Northland - would like to talk to those with heart problems and fibro.
    Click here for Joan in Timaru - would like to write to people with really bad I.B.S. (Irritable Bowel Syndrome).
    Please Note     Both 'Positive Living' and the Editor accept these writers in good faith as bone fide people with fibro. and do not accept any responsibility for any information given or developments in the relationships.

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    Making Life Easier and More Fun!
    ...opportunities to hear top speakers
        ...all experts in their field.


    Email your online address to Jacqui to receive 'Positive Living Online'
    the regular online newspage for people in New Zealand with Fibromyalgia and OOS/RSI.