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September 2001
This treatment is still experimental, and at present, not approved by Medicine in general, but some people, under the close guidance of their General Practitioner, have been using Guai with good results. Many of you may remember a letter from Amber in the May 2000 newsletter, and two more recently from Zanne, speaking about the use of Guaifenesin for treating Fibromyalgia.
Queries about Guaifenesin Use. We have found a person willing to help people with queries about using Guaifenesin. Megan has thoroughly researched Guaifenesin and spoken to Dr St Amand in the United States. She has been using Guai for three years herself. Look forward to some articles on everyday questions that Megan will be writing for us. Email Megan
New Local Source for Guaifenesin. Would people interested in buying Guaifenesin locally, please contact "Positive Living". An excellent local source has been developed for Guaifenesin users. Guai supplies can be supplied in smaller quantities if necessary. of Wellington, who has been taking Guai since May 2000.
As far as I understand - it is necessary to observe the fibro symptoms & medicate accordingly. It is also important to keep to a salycitate-free diet and stay closely to the recommended protocol. I am extremely concerned about some doctors prescribing Guaifenesin to people who do not even understand properly about Fibro and its symptoms and doctors who also do not stay in close contact with their clients. I am concerned that Guai may become freely attainable in New Zealand without a prescription and people begin to use it without the guidance of medical doctors.
I would very much like to be able to run a local study to examine the
"Use of Guaifenesin in New Zealand", and have been active to that end. Understanding use of Guai is still experimental, if we could have the people who are using it now, under the watchful eye of a person prepared to document progress of the group, I think the knowledge gained could be useful to others. Anecdotal evidence does not wash with many professionals.Would all people in New Zealand with fibro, who are already taking Guai and/or who would like to be part of a study on Guaifenesin, could you
write to Jacqui at "Positive Living" with contact details especially name, phone number, email (if available) and postal address, please? This study will take some time to set up and knowing what interest is out there, would be helpful in whether it should be pursued or not. For all information we have on Guaifenesin read our website page click here, including these recent papers written by Professor Robert Bennett M.D. of the Dept of Medicine at Oregon State University, Paper 1 on the Study itself, and Paper 2, in which he concluded by saying: "There is no doubt that many fibromyalgia patients have been helped by Dr. St. Amand and one can only speculate as to why they improved."I am looking for a Researcher, General Practitioner or Specialist who would be prepared to overview a study of Guaifenesin users in New Zealand. In this way we would have local knowledge of their progress. If any of you know of a doctor who would help in this, or someone who could undertake a study, please contact Jacqui.
June 2001
Many of you may remember a letter from Amber, in the May 2000 newsletter, speaking about the use of Guaifenesin for treating Fibromyalgia or the letters from Zanne on 4th April. and 14th May.
Then, as now, this treatment is still experimental but some people, under the close guidance of their General Practitioner, have been using Guai with good results.As far as I understand - it is necessary to observe the fibro symptoms & medicate accordingly with reference to the St Amand protocol. I am extremely concerned about some doctors prescribing Guaifenesin to people who do not even understand properly about Fibro and its symptoms. I am also concerned that Guai may become freely attainable in New Zealand without a prescription and people begin to use Guai without the guidance and support of their General Practitioner.
I would very much like to be able to run a local study here in NZ and have been active towards that end. Understanding Guai is still experimental, if we could have the people who are using Guai now, under the watchful eye of a person prepared to document progress of the group, I think the knowledge gained could be useful to others. Anecdotal evidence does not wash with many professionals.
Would all people in New Zealand with fibro, who are already taking Guai and/or who would like to be part of a study on Guaifenesin, could you please write to Jacqui at "Positive Living" with contact details especially name, phone number, email (if available) and postal address, please? This study will take some time to set up and knowing the amount of interest out there, would be helpful in whether it should be pursued or not.
Anyone who has an interest in this Study, please email Jacqui or phone 09 578 1958.