A Letter from Zanne - 1
4 April 2001

If you are serious about beating fms then let me give you some encouragement to start with.

Firstly you will need an amazing amount of guts.. real guts.. and discipline, but most of all you will need a loving doctor if you can find one, because your doctor will be your absolute mainstay. I have been lucky enough to have found a young man who is so special whom I will refer to as D.J. He is so keen to learn all about fms.

When we started out on this venture neither of us knew anything about this disease but we were both determined to learn all we could and now it has become the most important project in my life. What D.J. finds out he passes on to me and what I find out I pass on to him so much so it is difficult to know who is the doctor and who is the patient.

The rewards have been unbelievable and the venture has been so exciting.

Am feeling a bit off tonight and wondering if there is a flare on the way. All will be revealed in time as to what these terms mean.

We look forward to hearing more in your instalments, Zanne. It is only by sharing our experiences, others may learn the ways to cope and the things to avoid without the unecessary "trial and error". Thank you for this contribution - Ed.